Caregiver approaches, resiliencies, and experiences raising individuals with fetal alcohol spectrum disorder: A study protocol paper

The goal of this paper is to share information about why and how this study is being done, and potentially guide other teams in developing similar projects to better understand caregivers’ experiences, needs, and successes. Documenting and giving voice to the breadth and depth of caregiver experiences will help us to tailor services and supports, develop resources, stimulate knowledge translation based in resilience and protective factors, guide future studies, and inform evidence-based policy initiatives.

Transitions into adulthood for people with fetal alcohol spectrum disorder: A scoping review of promising practices

Twenty-one peer-reviewed sources were included in this review. Studies largely focused on one of three areas: (1) programs supporting youth with FASD and their families, (2) lived experiences of individuals with FASD during the transition to adulthood, or (3) preventing adverse outcomes. Recommendations from included studies highlighted the importance of programs and supports that demonstrate an understanding of FASD and emphasize relationship-building, the benefits of obtaining an FASD diagnosis, the notable gap in services for individuals who have transitioned to adulthood, and the importance of consistent advocates in the lives of youth with FASD.

Collaborative Action on Fetal Alcohol Spectrum Disorder Prevention: Principles for Enacting the Truth and Reconciliation Commission Call to Action #33

The association between fetal alcohol spectrum disorder (FASD), residential schools and subsequent assimilatory policies in Canada is of such significance that it was included in the groundbreaking Truth and Reconciliation Commission of Canada’s Final Report through Call to Action #33, which focuses on collaboratively developing FASD prevention programs in Indigenous communities.

Caregivers’ experiences and perceptions of suicidality among their children and youth with fetal alcohol spectrum disorder

Individuals with Fetal Alcohol Spectrum Disorder (FASD) experience a range of biopsychosocial vulnerabilities that can increase the possibility of adverse life outcomes, including a heightened risk of suicidality. In this study, we explored the lived experiences of caregivers of children and youth with FASD and suicidality, including their perceptions of their child and youth’s suicidal experiences.

The Prevalence of Fetal Alcohol Spectrum Disorder

Research on the prevalence of FASD is critical for understanding the scale of the disability in our communities and for identifying opportunities for supporting healthy pregnancies. This research can inform decisions about allocating resources and services to support healthy families, and aid in monitoring the effectiveness of prevention efforts.